I unfortunately have a lot that I’m working on, so this blog became a little dormant. I hated that, so I have started asking friends if they would like to write a guest post while I get things under control. The first is one of my closest friends, Anne Hornyak. Many of you have read her fabulous social media advice, but I don’t think many know what the degree to which she’s been sick since December. That is why I asked her to write about it and how she has/hasn’t been dealing with it. I didn’t know just how incredibly brave it was going to be.
That which does not kill us makes us stronger, right?
I’ve had mono for nearly 5 months now. The physical exhaustion is bad enough on its own but the mental anguish is even worse. At the height of it, I would rest the entire weekend, spending half of it in bed and the other half on the couch. Week after week for three months. Now most days are spent working too many hours and then resting and sleeping so that I can do it all again the next day. This is not the life I want to live.
The good news is that I’ve recently had a few good days in a row so I think I’m over the worst right now. At least I hope so. But I’ve felt this way a few weeks ago and the mono came back even stronger so it’s really too early to tell.
I also just started taking medicine for depression, which has made the exhaustion seem a little more tolerable.
Betsy asked if I would write about how I’ve been dealing (or even not dealing) with the depression that’s been brought on by the mono. At first I was a little leery because admitting that I couldn’t deal with this on my own somehow felt like a failure but hopefully my story can somehow help others with their battle.
I’ve actually been dealing with depression for a few years. It felt like it was under control but it was still affecting my overall attitude. It just recently became entirely unbearable and started to consume my daily life.
The frustration of not being able to do anything besides rest made me incredibly irritable and snippy. The people that I cared about the most were the ones that had to deal with the worst of my behavior. Anyone who knows me knows that I suffer from Catholic guilt so I would immediately feel bad for my actions, which only augmented the depression.
I have an amazing network of friends but I felt like I was abusing them because I always needed their support. I would bounce from friend to friend, trying not to become a burden to any one of them. I take pride in being strong and independent so when I really needed my friends the most, I started isolating myself. If it was the other way around, I would have grown tired of a friend always complaining and needing solace. Surely they must have felt the same.
A few weeks ago I confided in some friends and told them that I had been sobbing every day for no reason. They told me not to cry, but unless you’ve personally dealt with depression, it’s hard to understand. This was not something I could control. Believe me, I didn’t want to cry everyday. It’s not horrible when it happens at home (alone) but I’ve had tears well up in church and at the doctor’s office. It would have happened at other places too if I actually had enough energy to leave the house more regularly. Typically some thought triggered the tears. Sometimes it would be from glancing up from my laptop at a photo of Daisy, my dog that passed away last year. Other times it would just be from exhaustion or the unknown curiosity of wondering how long I had to wait until I could do normal things again. Until I could go back to my old life.
I’ve lost a lot of online credibility as a professional because all I tweeted were complaints about being sick and exhausted. Friends say that this isn’t true but I know it is. Perhaps “credibility” isn’t the right word. It’s more my reach and influence in the industry that has suffered. I still feel like a lot of the work that I had done to become a “somebody” has been ruined. When things are bad, the most logical step in this scenario is to become silent online, even though that makes things harder. When I want to cry, I keep it in. When I want to scream, I keep it in. When I want someone to hold my hand and tell me everything will be ok, I keep it in.
I know it will just take time and effort to bring back my social media influence but is it really worth it? My life is already divided between my job, health/sleep and the little self-promotion that I do. What can I give up to make room for more of a personal life? In the end, having thousands of twitter followers will mean nothing. Posting funny pictures of dinosaurs on Facebook will mean nothing. Getting views or comments on my blog will mean nothing. I need to prioritize but I’m too tired to take any actions.
Will I ever get better? My cousin has Chronic Fatigue Syndrome and my worst fear is that mono will develop into CFS for me as well. When you’re forced to deal with something day after day, you kind of become obsessed with it. There’s a lot of false information on the internet so it’s hard to say for sure but some cases of CFS may possibly be tied to the Epstein-Barr virus (EBV), which is the virus that causes infectious mononucleosis. The virus that I still have actively infecting me, according to recent tests. The virus that has eaten up the past 4-5 months of my life.
A few days ago, Betsy called me for my birthday. Towards the end of our conversation, she said, “you will get better” offhandedly. Those four words meant so much to me. Whether it’s with mono, depression or anything else, I may need a lot of help along the way but, eventually, I will get better. This is now my light at the end of the tunnel. I will get better.